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Positive Pinoy: my personal journey with HIV.

I was diagnosed last March 29, 2012 in a time that I was supposed to leave the country in a couple more weeks. I had my medical exam, and the result returned POSITIVE. From then on, my journey with HIV began.

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What's New?: gateway to useful links on local and international news and updates about HIV.

A summary collection of medical articles, research news, and science breakthroughs on HIV/AIDS, STIs, and other related diseases.

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HIV 101: Basic information for the newly-diagnosed.

Understand the basics, know the facts, and take care of yourself. This section contains basic information about HIV/AIDS.

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Social Media: going viral against HIV/AIDS and other STIs.

The entrance of social media in spreading awareness about HIV/AIDS has gone viral. Famous personalities and the common man alike showed their support not just to HIV education but also with regards to the lives and struggles of the LGBT community.

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Health Events: listing of wellness and advocacy events for HIV-positive individuals and friends.

This section contains a summary listing of knowledge-sharing events on HIV, mass HIV testing, and other wellness events that will strengthen the overall health of HIV-positive individuals.

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25) Philippine HIV infections pass 10,000-mark



MANILA, Philippines - A total of 278 new human immunodeficiency virus (HIV) cases were diagnosed in the country in July, up 36 percent compared to the 204 reported in the same month of 2011, a member of Congress said Wednesday.


Citing National Epidemiology Center statistics, LPG-MA Rep. Arnel Ty said the new infections brought to 1,878 the cumulative number of new HIV cases discovered in the seven months to July. 


Ty said the Philippine HIV and AIDS Registry, which began passive surveillance of the disease in 1984, now lists an aggregate of 10,242 cases, including 1,078 with full-blown AIDS.


HIV causes AIDS, or the Acquired Immune Deficiency Syndrome. The disease that destroys the human body’s immune system does not have any known cure. However, anti-retroviral treatments can slow down the ailment.
Ty is one of the five authors of House Bill 5312, which seeks to renew the country’s outmoded, 14-year-old AIDS Prevention and Control Law.


He said the House committee on health has already initially approved the bill, which is now pending with the (House) committee on appropriations.


The bill proposes to earmark an extra P400 million to launch a forceful new program to suppress the disease that is being spread in the country largely via sexual contact, predominantly male-to-male sex.


Modes of transmission 

Ty said the July cases included 36 overseas Filipino workers (OFWs) who all acquired the virus through sexual encounters, and 16 drug users who were all infected after they shared tainted needles.


He said last month’s cases – 265 males and 13 females ­– had a median age of 27 years, with those in the 20 to 29 age group comprising 58 percent.


Except for the 16 injecting drug users, all of the new cases in July were contaminated due to sexual activity, with males having sex with other males accounting for 85 percent. 


The Philippine National AIDS Council has warned that up to 46,000 Filipinos could be diagnosed with HIV by 2015, unless the rapid spread of the contagious disease is contained.


At the rate new cases are being spotted, the Philippine government could be spending up to P1 billion annually by 2015, just to procure the anti-retroviral drugs for Filipinos living with HIV, according to Dr. Edsel Salvana, a specialist in infectious disease medicine.


As of March 31, Ty said at least 2,278 Filipinos living with HIV were known to be undergoing anti-retroviral therapy.



Source:



24) US approves once-a-day pill to treat HIV




WASHINGTON DC - A new pill to treat HIV infection -- combining two previously approved drugs plus two new ones -- has been approved for adults living with the virus that causes AIDS, US regulators said Monday.

The single daily dose of Stribild provides a complete treatment regimen for HIV infection, the US Food and Drug Administration said in a statement.

"Through continued research and drug development, treatment for those infected with HIV has evolved from multi-pill regimens to single-pill regimens," said Edward Cox, director of the Office of Antimicrobial Products in the FDA's Center for Drug Evaluation and Research.

"New combination HIV drugs like Stribild help simplify treatment regimens."

The new regimen, made by Gilead Sciences in California, was tested in more than 1,400 patients, in two double-blind clinical trials.

Results showed that Stribild performed as well or better than two other treatment combinations, and brought virus readings down to undetectable levels in around nine of 10 patients after 48 weeks.

The drug combines Truvada -- another Gilead offering approved in 2004, that combines emtricitabine and tenofovir disoproxil fumarate to fight an enzyme that HIV needs to replicate -- with elvitegravir, another enzyme-fighting drug, and cobicistat, which enhances the effects of elvitegravir.

The drug was tested in adult patients not previously treated for HIV. The FDA said further study is required to determine the drug's safety for women and children, how resistance may develop, and whether the drug interacts with other drugs.


Sources:




23) July 2012 --- Philippine HIV and AIDS Registry




Newly Diagnosed HIV Cases in the Philippines


In July 2012, there were 278 new HIV Ab sero-positive individuals confirmed by the STD/AIDS Cooperative Central Laboratory (SACCL) and reported to the HIV and AIDS Registry. This was 36% higher compared to the same period last year.


Most of the cases (95%) were males. The median age was 27 years (age range: 15-70 years). The 20-29 year (58%) age-group had the most number of cases. Fifty-two percent (144) of the reported cases were from the National Capital Region (NCR).

Reported modes of transmission were sexual contact (262) and needle sharing among injecting drug users (16). Males having sex with other males (85%) were the predominant type of sexual transmission. Most (94%) of the cases were still asymptomatic at the time of reporting.


AIDS Cases

Of the 278 HIV positive cases, seventeen were reported as AIDS cases, all were males. The median age is 32 years (age range: 18-52 years). All acquired the infection through sexual contact (8 homosexual, 2 heterosexual, and 7 bisexual). There were no reported deaths for this month.


Overseas Filipino Workers


Thirty-six of the 278 (13%) reported cases were OFWs. There were 31 males and 5 females. The median age was 31 years (age range: 22-52 years). All acquired the infection through sexual contact (11 heterosexual, 14 homosexual, and 11 bisexual).





Source:

Philippine HIV and AIDS Registry


22) Controversial HIV and AIDS ads



Since the first recording of AIDS in the early 1980s, one would expect that more people would become aware of the disease, and at the same time, would take safety precautions with their actions.

Numerous ad campaigns have been launched here and abroad in an attempt raise awareness regarding HIV/AIDS. But how effective were these campaigns? Some of these ads have even received mixed reviews. From being controversial to being way over the top, what's your take on these ads?


AIDS makes us equal.

This French campaign stands out since most people are big fans of superheroes. It's easily noticeable, and a true attention-grabber. The message conveys that HIV/AIDS makes us all equal. No one is excused no matter what our status in life is. Neither Superman nor Superwoman is even safe.

The ad struck me personally because as a nurse for more than three years, and a running enthusiast as well, I never thought that I would get infected as I have always looked and felt healthy. Again, no one's safe anymore.


Each time you sleep with someone, you also sleep with his past.



This Canadian ad of Bristol-Myers Squibb was executed by BleuBlancRouge. This ad was chosen by the company to raise public awareness of risky sexual practices.


If the past is interfering with your relationship: check-your-lovelife.ch

1. No intercourse without a condom.
2. No sperm or blood in the mouth.

This is a campaign by the Swiss Federal Office of Public Health and the Swiss AIDS Federation. Check-your-lovelife.ch is an online site which provides basic information on HIV/AIDS, and it also contains their group's archive of previous ad campaigns.




AIDS is a Mass Murderer.

These German ads on AIDS was condemned by European HIV charities when they were released in 2009. The video and poster ads featured the lookalikes of Adolf Hitler, Saddam Hussein, and Joseph Stalin . It initially shows blurred clips of a couple having sex. Before the end of the clip, the man is then revealed to be Hitler, and a tag line is flashed: AIDS is a mass murderer.

But of course, the tag line refers to the fact that nearly 30 million people died from AIDS-related causes since the beginning of the epidemic.


References:
advertolog.com
eurokulture.missouri.edu
oddee.com

21) Bawal ang Pasaway: Positibo --- Usapang HIV/AIDS sa Pilipinas



For those who missed the episode of Bawal ang Pasaway last Wednesday, August 22 (I did, unfortunately), I attached here a segment of the episode which I found at the website of GMA. The guests of Prof. Solita Monsod include Wanggo Gallaga, HIV positive and writer for the Philippine Star, and Philip Castro, program officer of the United Nations Development Program.


Mareng Winnie: "You know na ikaw ay kandidato for AIDS only because you know your own sexual behavior."


Personal Note:

I always feel sad every time I see interviews about HIV such as this one. Mareng Winnie even said, "How can someone as intelligent and as knowledgeable as Wanggo contract AIDS?"

In my family, humility aside, I am considered the brightest among the children, having graduated with two courses, and two professional licenses under my name. I even worked for big companies. Those were the proud moments of my mother. Now that I have HIV, and I haven't disclosed my status to any family member or even to my friends, I just can't imagine what their reactions will be. I don't even know when the right time is to disclose about my status.

For now, I thank God for my high CD4 that I still do not need to take ARVs. It is just my ardent wish that when the right times comes, I'll be accepted by my family, most especially by my Mom.

Keep safe everyone, and God bless you!



20) Immortal Body, Immortal Pain : Immuno-compromised


Immortal Body, Immortal Pain

Marvin: One of my beloved artworks I created. I offer it to all those who feel depressed and burdened with life. Suicide seems like a viable and only option but then, it never is. This is an artwork to express that terrible loneliness.



Immuno-compromised

I have sores all over me:

They scar my fragile surface

Like constellations

Spanning the universe

Of my feeble flesh.

I gasp and sigh.

I hear the delirious

Whispers from my thighs.

These are not moans

But the sole sounds of my bones

Breaking into mourning.



Maybe I should be glad

That something still feeds on me.

I want this love to die

But it cannot be.

It is the disease

Which runs alongside

The potent malady in my being.

Compromised I will forever be.

But with you, I find the strength

To make myself immune

Against all this insanity.



*Marvs, I may have failed to ask for your permission to post some of your works in my blog, but I'm pretty sure you'd allow me to, and you'd be delighted.

*Marvin's artwork can be found HERE, and the link of his poem can be found HERE.


19) Goodbye, Viral Brother


More than three years ago, I chanced upon a young man on a gay social networking site, guys4men. Although normal conversation between users in that site involves sex and meet-ups, we talked more than that. He was into literature: short stories and poems. His enthusiasm in these forms of art reminded me of an ex-boyfriend, which made me like him. His name is Marvin. We sometimes chat over YM, and have exchanged friendster accounts. However, our communication halted, probably because he was busy with his studies, and I, with work. We eventually forgot about each other’s existence.

April of this year, after I was diagnosed with HIV, I stumbled upon people living with HIV in facebook and twitter. I needed help, I was in a state of panic. One of them encouraged me to make a blog, telling me it will feel better if I ventilate my feelings through writing. He shared his blog too. Upon seeing his cartoonized photo, I felt that I know the person I’m communicating with. I asked him if he is Marvin. He said yes.


His comment in my blog entry: Bits and Pieces


What a small world we have, really! Marvin and I never met in person, but in a span of several years, we met again over the Internet. Only this time, we are both HIV positive.

He is one of the very first persons who knew about my HIV status: talked with, listened to my worries, took the time to monitor my daily activities; gave me instructions on what to do; made sure that I’m alright; calmed me; cared for me.

He was diagnosed last February 2012, and his initial CD4 count was 2 (which makes him an AIDS case), yet he fought the battle well. His voice still reverberates in my ears at times, and I can still hear him calling me “Kuya” with so much enthusiasm. He told me that he is surviving at 2, and added that I’d be sure to survive better because of my early diagnosis.

We talked about online writing work, as that is what we do for a living. He was a book reviewer. I still am a marathon and real estate news writer.  He suggested a lot of other online sites where I can earn, and work is home-based at that. His eagerness to help others is just so wholehearted.

At around third week of July, he told me that he fainted while working online. I told him to tell his mother about that, and that he should go to his hub for consultation. He refused. He feared that his mom might not allow him to continue with his online work. When he fainted the second time, I learned from other twitter friends that he had himself checked by his HIV hub.


His comment in my blog entry: Somewhere over the Rainbow


And then the weird messages from Marvin came. He questioned the researched and tested data about HIV and AIDS. He told me he has found the cure. He said he was an elite controller. He said he was misdiagnosed as having HIV, and should have been diagnosed as schizophrenic. I told him that maybe he has just read a lot of books, and that he internalized what he has read. I told him that when people read about schizophrenia, for example, a person may find some schizophrenic traits within himself. But that doesn’t conclude anything unless diagnosed by a medical doctor.

That wasn’t the Marvin that I know. It was the virus talking. AIDS got him really bad, and destroyed his thoughts.

I admit that I somehow neglected Marvin. I believe that I do not have the authority to give him advice (medical or personal) as it may jeopardize his treatment. I refused to be self-righteous either. I have always encouraged him to talk to his doctor. It’s just so sad to know that in that state, others may have harshly judged him. Yes, I felt that he may have lost touch with reality, but were we therapeutic in dealing with him? He was a young man at 21, and he was helpless!

Last August 15, from twitter, where Marvin and I usually communicate to each other, I received the news that someone passed away. Then I received calls from twitter friends telling me it was Marvin.

You did not die in vain, Marvin. Your literary works will always be remembered by your friends and by our community. I will always remember your eagerness to help others through your advocacy. We may not always agree on some things, but no two minds are alike anyway. This will not be the last time I would hear about you, as more and more people will talk about you, your mission, and your advocacy.

You will always be my makulit younger viral brother.


For your reference, here are the links to his blog sites:

He was also a contributing writer to Positive Lite.com, Canada's online HIV magazine. Here are the links to his entries:

Positive Lite.com's tribute article to Marvin: click HERE
The STD Project's tribute article to Marvin: click HERE
Marvin's interview with The STD Project: click HERE


18) Cyberbullying: student falsely accused of intentionally spreading HIV



This happened last July 2012, and have been posted on numerous sites over the Internet. It is worthy to be re-posted to keep us informed that this new kind of cyber-bullying exists, and must be stopped. We must also be cautious of the information we share/re-post in our social networking accounts especially if the contents are sensitive in nature. And much worse, if the information and/or accusation being shared and passed on is unverified.

I contacted the victim, Mr. Raymond J. Malinay-Lopez, through facebook and I was given permission to post the video that he made regarding the issue.


Here is an excerpt taken on the facebook account of Mr. Malinay-Lopez:


     It does not matter whether or not any of the individuals involved have HIV/AIDS or not. What is important here is that each person is entitled to full confidentiality regarding their HIV/AIDS status under R.A. 8504 (Philippine AIDS Prevention and Control Act of 1998), and that should be universally respected. No one deserves their name slandered over social media in that manner, and such hate speech ought to stop. And of course, being diagnosed with HIV/AIDS is not a death sentence and there have been many advances in modern medicine to help people living with HIV live good lives provided they are diagnosed early enough.


Here is also the statement of the AIDS Society of the Philippines:  


     The AIDS Society of the Philippines (ASP) Board of Trustees and its staff members vehemently state that the organization is not accountable and is not associated in whatever form and manner with the "NOTICE TO THE PUBLIC" that is currently circulating in the social media.

     For all its supposed intents and purposes, the notice and whoever is behind it is a blatant attack on the ASP's name and track record. The organization has remained and will always remain professional and genuinely committed with its HIV and AIDS prevention initiatives and is conscientious in its role and responsibility  to protect the rights of all individuals.

     The ASP is currently undertaking an investigation and taking on the appropriate discourse of actions to address this destructive assault on the organization.




17) New AIDS-like disease in Asians


Researchers have identified a mysterious new disease that has left scores of people in Asia and some in the United States with AIDS-like symptoms even though they are not infected with HIV.

The patients' immune systems become damaged, leaving them unable to fend off germs as healthy people do. What triggers this is not known, but the disease does not seem to be contagious.

This is another kind of acquired immune deficiency that is not inherited and  occurs in adults, but doesn't spread the way AIDS does through a virus, said Dr. Sarah Browne, a scientist at the National Institute of Allergy and Infectious Diseases.

Scientists at the National Institutes of Health led a study in Thailand and Taiwan of more than 200 people with the disease. Most of them make substances called autoantibodies that block interferon-gamma, a chemical signal that helps the body clear infections.

The fact that nearly all the patients so far have been Asian or Asian-born people living elsewhere suggests that genetic factors and something in the environment such as an infection may trigger the disease, researchers conclude.

For the full story, please click this LINK.

References:
huffingtonpost.com/2012/08/22/aids-like-disease-asians-immune-system_n_1823296.html
newschannel9.com
AIDS News Daily


16) Social Hygiene Clinics



A great percentage of people do not know that they have already been infected by HIV. An infected individual can feel, look, and act healthy just like a non-HIV positive individual. And just like any person, he can have common symptoms of infection such as flu, cough, fever, and sore throat, but still, do not think that it can already be HIV.

The only way to know your status is through an HIV test.

Here is a list of places where you can for HIV testing. Normally, they provide the test for free.



LUZON

Angeles Social Hygiene Clinic
Dr. Lucielle Ayuyao - Social Hygiene Clinic Physician
1-20 Cristina Drive, Villa Teresa Subd., Angeles City
(045) 3222979 / (0915) 987-2100

Caloocan Social Hygiene Clinic
Dr. Zenaida Calupaz - Social Hygiene Clinic Physician
Mabini St. Calocan Health Dept. 
2888811 loc. 2281 / (0917) 601-8331

Laoag Social Hygiene Clinic
Dr. Imelda Tamayo - Social Hygiene Clinic Physician
Brgy. 10, City Health Office, Tupaz, Laoag City
(077) 7720289 / (0918) 979-7491

Makati City Social Hygiene Clinic
Dr. Calixto Salud - Social Hygiene Clinic Physician
JP Rizal St. Brgy. Poblacion, Makati City
8701615

Mandaluyong City Social Hygiene Clinic
Dr. Yolanda Tuaño - Social Hygiene Clinic Physician
Maysilo Circle, Mandaluyong City
5467799; 2115336 / (0917) 842-4298

Manila Social Hygiene Clinic
Dr. Diane Mendoza - Social Hygiene Clinic Physician
San Lazaro, Sta. Cruz, Manila
7116942 / (0920) 577-9074

Marikina City Social Hygiene Clinic
Dr. Honielyn Fernando - Social Hygiene Clinic Physician
Marikina City
(0917) 829-8862

Pasay Social Hygiene Clinic
Dr. Loretta Garcia - Social Hygiene Clinic Physician 
Pasay City Health Office 
5514180 / (0922) 891-5674

Pasig City Social Hygiene Clinic
Dr. Rocylene Roque - Social Hygiene Clinic Physician
Caruncho Avene. Brgy. San Nicolas, Pasig City
6400111

Puerto Galera Social Hygiene Clinic
Dr. Ginalyn Caguete - Social Hygiene Clinic Physician
Rural Health Clinic, Puerto Galera, Oriental Mindoro
(043) 4420182 / (0927) 238-3989

Puerto Princesa Social Hygiene Clinic
Dr. Eunice Herrera - Social Hygiene Clinic Physician
City Health Office, Puerto Princesa, Palawan
(043) 4658182 / 09272383989

Batasan Social Hygiene Clinic
Dr. Dottie Mercado - Social Hygiene Clinic Physician
Batasan Hills, Quezon City
(0905) 357-6353

Bernardo Social Hygiene Clinic
Dr. Suzette Encisa - Social Hygiene Clinic Physician
Bernardo Clinic, Quezon City
(0916) 478-1607

Project 7 Social Hygiene Clinic
Dr. Monina Santos - Social Hygiene Clinic Physician
Project 7 , Quezon City
(0918) 618-4133

Santiago Social Hygiene Clinic
Dr. Robelyn Vera Go - Social Hygiene Clinic Physician
City Health Office, San Andres, Santiago City
(078) 6827687 / (0919) 462-6389

Jose Reyes Memorial Medical Center (JRMMC)
Dr. Christine Villaroman
Quiricada St. Sta. Cruz, Manlia
(0922) 824-5216

MEDI - Jose Reyes Memorial Medical Center
Dr. Ma. Luisa M. Date
Bldg. 14, DOH Compound Sta. Cruz, Manila
7438301 loc. 1702

Tuguegarao Social Hygiene Clinic
Dr. Josefina Chua - Social Hygiene Clinic Physician
City Health Office, Tugegarao City
(078) 8462197 / (0917) 574-5050


VISAYAS

Cebu City Social Hygiene Clinic
Dr. Ilya Tac –an - Social Hygiene Clinic Physician
Gen. Maxilano St. Cebu City
(022) 3659962 / (0917) 329-1663

Iloilo Social Hygiene Clinic
Dr. Odetta Villaruel - Social Hygiene Clinic Physician
Iloilo City
(033) 3208151 / (0921) 569-4450

Lapu-Lapu Ciy Social Hygiene Clinic
Dr. Rodolfo C. Berame - Social Hygiene Clinic Physician

Mandaue City Social Hygiene Clinic
Dr. Edna Seno and Dr. Debra Maria Catulong - Social Hygiene Clinic Physician


MINDANAO

Butuan Social Hygiene Clinic
Dr. Jesus Chin- Chui - Social Hygiene Clinic Physician
City Health Office, Butuan City
(085) 3423432; 815111 loc. 1039

Davao City Social Hygiene Clinic
Dr. Jordana Ramitere - Social Hygiene Clinic Physician
City Health Office, Magallanes St. Davao City
(222) 4187 / (0920) 910-2718

Davao Regional Hospital
Ms. Telesfora A Hinay
Apokon, Tagum City
(082) 2218593; 2279536; 4003653

General Santos Social Hygiene Clinic
Dr. Mely Lastimoso - Social Hygiene Clinic Physician
General Santos City Hospital
(083) 3051510 / (0908) 887-7512; (0919) 848-3116

Zamboanga Social Hygiene Clinic
Dr Kibtiya Uddin - Social Hygiene Clinic Physician
Petit Barracks, Zone 4C, Cty Health Office, Zamboanga City 
(0927) 483-6672


Useful Link: HIV HUBS IN THE PHILIPPINES


References:

manilagayguy.net
stophivnow.blogspot.com